Ataxia Research

Ataxia Research

We're taking a look at some of the work being done at the USF Ataxia Research Center, particularly in a clinical trial of a drug that might become the first approved treatment for Freidreich's ataxia. University Beat on WUSF TV also introduces you to an FA patient and tells you about a pair of very important upcoming events for the Center.

Ataxia Research

Friedreich’s ataxia is a rare, debilitating neuro-muscular disease that slowly robs a person of their strength and ability to walk - and at this time, there’s no approved treatment for the disease.
USF is the lead site on a national clinical trial of a drug that will hopefully help control symptoms of F-A. On this week’s University Beat on WUSF 89.7, we’ll tell you more about the trial and some upcoming Friedreich-related’s events in Tampa. You’ll also meet a young woman participating in the trial who refuses to let the disease take control of her life.

Video Extras

Natchez Hanson Describes Her Life with Friedrich's Ataxia

24-year-old Natchez Hanson describes what it's like living with Friedreich's ataxia and talks about how her students at Fort Meade Middle-Senior School in Polk County treat her.

More Information: 

USF Ataxia Research Center
Clinic Appointments: 813-396-9478
website
Friedreich's Ataxia Research Alliance (FARA)
484-879-6160 website
Edison Pharmaceuticals Inc.
website
Clinical trial of EPI-743 is already full & underway
USF-FARA EVENTS
Thursday, September 5th
Understanding A Cure Friedreich's Ataxia Scientific Symposium
USF Health’s Center for Advanced Medical Learning and Simulation (CAMLS)
Click here to RSVP, free to the public, will also be live-streamed
Saturday, September 7th
2013 FARA Energy Ball
A La Carte Event Pavilion Tampa
Click here for ticket info

Host:
[body]

Contact Information


Get the WUSF Mobile App!

FirstChoice eNewsletter