We're taking a look at some of the work being done at the USF Ataxia Research Center, particularly in a clinical trial of a drug that might become the first approved treatment for Freidreich's ataxia. University Beat on WUSF TV also introduces you to an FA patient and tells you about a pair of very important upcoming events for the Center.
Friedreich’s ataxia is a rare, debilitating neuro-muscular disease that slowly robs a person of their strength and ability to walk - and at this time, there’s no approved treatment for the disease.
USF is the lead site on a national clinical trial of a drug that will hopefully help control symptoms of F-A. On this week’s University Beat on WUSF 89.7, we’ll tell you more about the trial and some upcoming Friedreich-related’s events in Tampa. You’ll also meet a young woman participating in the trial who refuses to let the disease take control of her life.
24-year-old Natchez Hanson describes what it's like living with Friedreich's ataxia and talks about how her students at Fort Meade Middle-Senior School in Polk County treat her.
USF Ataxia Research Center
Clinic Appointments: 813-396-9478
Friedreich's Ataxia Research Alliance (FARA)
Edison Pharmaceuticals Inc.
Clinical trial of EPI-743 is already full & underway
Thursday, September 5th
Understanding A Cure Friedreich's Ataxia Scientific Symposium
USF Healthâ€™s Center for Advanced Medical Learning and Simulation (CAMLS)
Click here to RSVP, free to the public, will also be live-streamed
Saturday, September 7th
2013 FARA Energy Ball
A La Carte Event Pavilion Tampa
Click here for ticket info
Radio - During "Morning Edition" on WUSF 89.7 Tuesday after the 6:45 AM and 8:45 AM newscasts | During "All Things Considered" on WUSF 89.7 Tuesday at 5:44 PM | After "Florida Matters" on WSMR 89.1 Monday just before 10:30 PM
Mark Schreiner has been the producer and reporter for "University Beat" on WUSF 89.7 FM since 2001 and on WUSF TV since 2007. He has worked as an anchor, reporter and producer at radio stations in Tampa and his native Chicago since 1992.